Friday July 20th, Friends and Family

We went in today to have a post chemo shot (that really hurt Ingram) in the leg instead of in his port, labs done to check his kidneys again, and a Clinic visit.  Our clinic visit was supposed to be quick. but they came in with kidney function that wasn't the best.  Little man is still on fluids and will be through the weekend, but he's very much used to it and carries his bag around with him wherever he goes.  We'll go in again tomorrow and Sunday to change out the fluids and get labs to see the progession of his counts. 

I'm sitting here trying to write about today and I just can't seem to think.  I think my mind is starting to shut down for some reason.  I'm a little tired, a little on the emotional side, and still a little overwhelmed by everything.  I have run into our friends Bethany and Scott a few times and talking with them sends me back to the beginning of our time at St. Jude because they still don't have a plan yet to fight for their son's life for the third time.  They are firm believers that God is the Author of Jayden's story just as we are that He's writing Ingram's story; but there's just something that a mother and a father want to do for their children but all we can do is pray for our kids and trust the people taking care them. 

We've met so many patients and families in our short time at St. Jude that I it's hard to keep up with them all.  We don't get in and out of the hospital fast because we're always running into someone else and see how they're doing in their treatment.  Being a patient at St. Jude really is like being part of our family that's hard to explain.  So as I think about today, I'm thinking about our battle but I'm also thinking about all of our friends battles as well.  At some point, we're all down in the dumps and we depend on others to bring us out.  Our kids have good days and bad days, but the thing about St. Jude is that they're always fighting for us, for our kids, and for the kids that will be there in the future. 


Sleepover Part 1
Lindsey and Ingram started out in the back having a "sleepover,"
but decided to move their sleepover to...
Sleepover Part 2
Ingram decided he wanted to sleep in his bed,
but I'm thinking it was Lindsey that wanted to come downstairs!
Sleepover Part 3
Ingram wanted us all together since Madison was at a friends house.
And yes, that's a closet Lindsey is sleeping in.


Thursday July 19th, We're Home!!

Man, today was crazy; we've gone non-stop since we got up!!  Lindsey spent the night at the hospital and we all actually got a fairly decent nights sleep for being in the hospital.  Lindsey was a little too excited about breakfast in bed and headed down to the cafeteria to get her breakfast and they both went nutty with the bacon.  After breakfast, it was off to the playroom till it was time for the Sibling Day events.

Sibling Day was soooo much fun!  The girls felt so special and had so much fun.  Of course, Ingram wanted to go with them but he got side tracked with a little painting project from the Child Life gals so all was good.  The girls got to walk the red carpet across to the Danny Thomas Pavilion and had their pictures taken and were recorded also.  The guys from Dean Film and Studio that put together the girls amazing video was there too as part of the camera crew for the day; if you haven't checked out the video, google "Team Ingram" video on You Tube and Vimeo!  You'll be amazed!!!

Our nurse kept trying to discharge us but we were no where to be found for a couple hours.  Painting a Build-A-Bear canvas, playing games, and talking with friends took a little longer than we thought but once we got back upstairs to our room, it was time to go home.  Discharge instructions, Ingram's little black bag of fluids, and two wagon loads later we were in the car headed to the house.  It's going to be soooo good to sleep in our beds tonight!!

Ingram's Star Siblings Were Shining Bright!  

"Help!  Get Beau!!!"
Beau Loves Trying To Get Ingram's Black Bag
 As Much As He likes Getting His Marshmallows!!



Wednesday July 18th, Round Two

I don't know what I expected with us going inpatient, but we've really had a good time.  Don't get me wrong, having drugs put into Ingram from nurses who are dressed in blue gowns and wearing gloves makes me a little more than nervous, but we've colored, danced to the jukebox, gone on walks around the hospital and played with a few friends along the way.  I think that Ingram's favorite thing to do other than go to the playroom is to hang on the infusion machine pole and ride around everywhere.

Since Madison spent the night with us, the first thing we did was order breakfast and they had breakfast in bed while I showered and everything.  The first thing Ingram said when he woke up was not "Hey Mommy!" but it was "I'm ready to go to the playroom!"  But I'm such a mean mommy that I made them eat their breakfast first; then it was off to see what all they could get into in the playroom.  Ingram was so happy to have her here and I think she too was on excitement overload.    

Craig and I also had overload today but it was information overload!  We were told about all the things that could go wrong with chemo and  more than we ever wanted to know about counts, germs, and infection .  Craig and I were told so much in such a little amount of time that I think I'm still trying to figure it all out.  It's all a little scary about what these drugs do to their systems, but our doctors recommended this course of treatment so we're hitting it with all we can. 

Ingram is actually doing really well right now and they're moving up our discharge to tomorrow instead of Friday as long as his labs, especially his kidney functions, come back looking good.  He'll stay on fluids again tonight in the hospital to help get the rest of the medicine out of his system.  If his kidneys coooperate, then we should go home on fluids and return Friday for more labs and unfortunately a shot of something with a weird name.   Hopefully, we will all get a better night's sleep since we have a big day tomorrow at St. Jude...It's Sibling Day!!!!

I definitely AM crazy letting the girls take turns spending the night;
but then again, I never said I was sane!
Ingram's been asking me ever since Madison left when "His Lindsey" was coming.
Pretty cute huh??


     

Tuesday July 17th, Round One

After going to bed after midnight, I woke Ingram up at 6:15am to head to St. Jude with hopes of things going "according to plan" today. He didn't seem to mind the early wake up though and after I told him we needed to go check his kidneys, he was off to the car faster than me. First up were labs then we headed to grab some bacon (normally called breakfast but he's on a bacon kick, even calling people bacon head) while we waited for them to run all the tests.

We came back to the clinic for our results and found out they were good and we were indeed starting chemotherapy today. A mix of emotions were starting to come over me and I didnt know what to to with them. I wanted to see Craig right then so he could just hold me and tell me everything was going to be okay. I wanted to see the girls but they were with my sister having fun. I wanted all this to be over and for Ingram to be okay. I'm scared about how he's going to react to the drugs. I'm scared about how the girls are going to react to Ingram. I'm scared about how I'm going to react to everything! 

All these things were going through my head as we were actually going to start what we've been talking and preparing to do since Tuesday April 12th when Lebonheur discharged us to the care of St. Jude. This was our day so far and it was only mid-morning, maybe 10am at the latest. Finally at 4pm the first chemotherapy drug was pushed and all those feelings from the morning came rushing back. We've been praying that with the surgery, radiation, and chemo that his tumor would be gone and never come back; and today at 4pm marked beginning the last stage in our fight for Ingram.

There are so many unknowns that could have us in the bottom of the barrel but we're still believing that God loves Ingram more than we do and that he's going to not only conquer the battle, but also glorify God in the process. We would ask for continued prayers for Ingram during this time, that all of these medicines work, and also that his body is able to recover from the harshness of the drugs. We would also like to ask for prayers for our friend Jayden and his family tonight. They are heartbroken this evening as they received their test results. Jayden is only 4 and has been battling cancer since he was 15 months old.


Big sister Madison got to be the first to spend the night!
I must be CRAZY to do this!!!

Monday July 16th, A Complicated Day

Today did not go according to our plan...meaning we didn't get admitted to start chemotherapy today.  Things were going well and Ingram even let them "poke" him for his butterfly landing; he wasn't happy about it because he remembered last week's poke without numbing cream.  He named his butterfly "Percy" from The Octonauts (a new cartoon that he loves) and it's funny listening to him tell everyone else the name because they look at me like "What??" 

So next they drew tons of labs and then we went on our merry way to the clinic for all our instructions and room number.  Around lunch is when we found out that our plan might be getting derailed, but we had a few things to do before and to double check so back to the lab again for a redraw and other stuff.  Then off to the Diagnostic Imaging room for a set of ultrasounds on his kidneys to figure out why his Creatinine had doubled since Thursday. 

In between it all, we were just sitting around the hospital and waiting to find out if it was a fluke, if something was wrong with his kidneys, and I didn't like not knowing.  We even almost fell asleep on the couch watching a movie waiting for results and a new plan because it seemed our inpatient plan wasn't going to work.  

And it didn't...we finally left the hospital at 6pm tonight for home with a bag of fluids that are running till tomorrow.  Poor little guy was so tired, he was asleep before I even pulled out of the parking lot.  We'll head back in first thing in the morning to see if the his kidney function is back to normal and if it is, we'll be admitted tomorrow to start our first round.

While we were waiting, one of our friends sent a message that they were on their way back in to St. Jude for an unexpected set of tests.  They left St. Jude while we were still undergoing radiation with the hope of being finished with the Jayden's battle with cancer.  This evening as we were driving home, she sent the message that his cancer was back and my heart is aching for them.  They have been through this battle two times already and he's only 4 years old.  Please remember Jayden and his family in your prayers as I know right now; they will have another battle on their hands.  

Ingram's checking out his kidneys on the big screen.

2012's new look for men...The Man Purse!
It's coming back baby!!
Ingram has a little black bag that we brought home overnight with fluids;
his Aunt Amye has been toting it around behind him since we got home.

Sunday July 15th, The Video Premier!!!

Wow!  As a mother, I'm soooooo proud of my girls.  Ingram is my hero for battling cancer, but my girls are an inspiration to me in how much they love their little brother.  As you may remember, they have been filming a video about St. Jude and their brother.  I was not able to go to any of the taping sessions because I was always at the hospital with Ingram, but had been told about them by the girls, Craig, and Craig's mom.  I was prepared for it to be emotional, but my girls have me speechless. 

Tonight Dean Film and Video premiered the Team Ingram video and my heart has gone into overdrive.  The video is amazing.  We invited a few of our friends and some family to come with us to see the video for the first time.  The girls were super hyper because they were the stars of the night.  They definitely felt special! 

This officially begins what we think could be a big part of their fundraising for St. Jude.  We think this is partly how they are dealing with the situation - trying to help by raising money for the hospital that is treating their brother.  If you watch the video, you can probably see that. 

We are praying that God would use Madison and Lindsey's efforts for His glory.  We hope that their video will be sent all over the world so people can hear their story.  Please forward the link to all of your friends or put it on your Facebook pages! 



Video: http://vimeo.com/45553164



Once Again, Celebrating with Ice Cream!


Friday and Saturday July 13th and 14th, And They're Back!!!

Over the past two days, well really since 10am Friday until about 8pm Saturday, we've been in the car driving for about 12 hours and it was non-stop talking...from Ingram!  On the way to pick up the girls from Kanakuk, he talked our ears off;  we had about a 30 minute break when he fell asleep and that was it.  I honestly have no recollection of what he said other than "Momma this and Momma that, Daddy this and Daddy that" the whole time.  The same thing happened on the way home except he started throwing in the girls names too.  Finally, I decided to change my name but it didn't work too well so I finally gave up on thinking there would be any quiet time at all. 

Craig thought it was funny until he was on the phone with work and out of the clear blue Ingram shouts "BOAT!!!!!!!!!!!!!!!!!!" at the top of his lungs.  We were going down a two lane highway up and down the mountains and there happened to be a boat shop on the side of the road and of course he needed to notify the world that there was a boat.  It's great, really; Craig decided on this trip that Ingram was our boat alarm, but the thing is that we never really know when he's going to sound off!

We were so excited to see the girls and I think they were just as excited to see us too.  We didn't know that we would all be making the trip until 10pm the night before and I'm so glad we all got to make it, despite not having any quiet time in the car.  It was 100% worth it to get to see their faces when they saw us and Ingram.

The downside of getting home from Kamp today is that we've got to get 4 weeks worth of laundry washed, dried, folded, and put away all before tomorrow night since we'll be going into the hospital first thing Monday morning for Ingram's first chemotherapy treatment.  The upside is that for the first time since April 3rd, Ingram is not sleeping on his little mattress in our bedroom; he's sleeping with his girls in their room.  It's the cutest thing!


4pm Friday afternoon...The First Sighting!!!
9am Saturday morning...Back For More!!!


12pm Saturday Afternoon...Leaving New And Old Friends From Kamp :(

10pm Saturday Night...Total Exhaustion!!!



Thursday July 12th, A Special Accomplishment!

Where to even begin is so hard sometimes!  There are so many things rolling through my head right now it's starting to make me spin.  I'm not sure if everything has sunk in yet either, but we are praising God for such good test results and for using everyone involved as His handiwork to comfort and care for us. 

Ingram did such a great job today getting all his labs drawn.  He even did something that he's never done before and I had to see a picture of it before I believed  it.  His nurse, Virginia, was so proud of him that she gave him a special bead that celebrates "A Special Accomplishment" like today.  For Ingram's second round of labs, Craig was at the hospital with us and Ingram wanted Daddy to take him to the lab.  Ingram did not want to sit in Craig's lap, but instead wanted Daddy to watch him do everything.  He took off his tape, undid his butterfly cord, took off the bandaid, cleaned the clave, flushed the line, attached the syringe, drew his blood, then flushed it again, pushed the heparin, and sealed it again all with the assistance of the nurse.  He has never, ever done this before and got the biggest kick out of being a super big boy!  This was a huge accomplishment for him!!!! 

While we were in the lab the third time he wanted me with him to show me how he does things so we left Daddy in the clinic to wait for the doctor.  Into our clinic walks Tim Howard from the United States Soccer team, only the best US goalie ever!  He plays for Everton in the English Premier Soccer League and is one of the best goalies in the world; and he recognized Craig (they know each other) in a waiting room at St. Jude Children's Hospital in Memphis, TN.  How crazy is that??  Of course Craig came and got us and we went walking around until we found Tim and let Ingram meet him; our girls (fantastic soccer players themselves) are going to be sooooo jealous!  When we were talking with Tim, Ingram stood behind me, peeked his head out, and said "I can beat you at soccer!" and everyone around us just started cracking up.  They were also comparing bald spots!  I love seeing both of my guys with big grins on their faces!!

Ok, back to business.  We talked in depth about Ingram's cancer today and are very pleased with everything so far.  No signs of tumor on the MRI and the spinal fluid was good too; they always look at these results more than once and we anticipate the next look being good as well.  Ingram will start Chemotherapy Monday and the doctors are scheduling 6 rounds instead of 4 as we initially thought.  On the good news side, we only have to be inpatient for three nights at a time and that will make managing a home, a husband, and two active daughters much easier than we were coming into this thinking.  Each round is about a month (give or take) with the worst being the first two weeks of each round.  We're gearing up for the long haul and are really excited about spending another good weekend together as the girls come home from camp before we get rolling. 

More big news...Pretty soon, we will have a link available for the video that the girls made about Ingram and St. Jude; all I can say is that the video is remarkable and you won't want to miss it!  It even has information about St. Jude, Team Ingram, and of course Ingram the Conqueror on it.  Speaking of Team Ingram, there's a link at the top of the page that takes you directly to the website! 


Notice all the stuff out; and that's only half of what's done each time! 
He did this four times today; he's MY hero!

Ingram and US Goalie Tim Howard;
He's only 3 and a half and already talking about taking on the big boys!


I love it when brand new friends make you feel as though you've known each other forever.
It's even better when your kids act the same way!!

Wednesday July 11th, Preliminary Test Results

Ingram had a really big day today, well all of us really.  Today was Ingram's second MRI since his treatment began.  He had one after his surgery and one right before radiation began.  If you read Ashley's blog last night, you know that we were a bit nervous about the results.  Ependymoma is an aggressive cancer and, while it would be unusual for it to recur within the first three months, we were still concerned nonetheless. 

We are excited that the MRI showed that there were no signs of a tumor in his brain.  We are still waiting for the results of the spinal tap.  It is hard to imagine that this was just the second of these MRIs.  We will have to get them for a long time to come and the waiting is unbearable.  It feels as if Ingram's fate is almost hanging in the balance as we wait. 

Tomorrow we meet with our main doctor about the complete test results in detail and also will talk about his course of chemotherapy that is set to start Monday.  They're also going to be performing a set of tests for Ingram's kidney function that will last all day, drawing labs every two hours.  This may not be as pleasant as in the past because his butterfly (named Thomas the Train) is bugging him every now and then; plus he's been out of routine of having anything done since we've been on vacation from the hospital for almost a month.  Since radiation ended a month ago, we've been at the hospital twice! 


Ingram Is Developing Quite The Collection Of Bands!
This Is At 7am.

We Dismukes Celebrate Everything With Ice Cream!
This At 4pm This Afternoon.


Tuesday July 10th, Getting A Little Antsy!

I've finished all the laundry, done all the housework, and even put Ingram to bed early tonight.  We had a full day of fun including lunch at Chic Fil A, a long visit at Daddy's office, getting caught out in a huge thunderstorm, and bathing Beau after he too was caught outside in a thunderstorm.  Now that all is quiet in the house, I'm starting to get a little antsy about tomorrow. 

We go back to St. Jude for the first set of tests since before Ingram started radiation.  From his previous round of testing in April, Ingram's tumor was removed completely and his spinal fluid from his first spinal tap was clear which is the best situation possible.  Ingram spent May and June undergoing radiation and is getting ready to start the second part of his treatment which is several rounds of chemotherapy. 

And we have a very full day tomorrow...starting in the lab to get a new butterfly at 7am; I can tell you now that Ingram does not want to start his day with a "poke!"  After his labs, we have a clinic visit to make sure everything is still a go for being sedated.  Next up Ingram will get sedated and then go through a couple hours in the MRI having scans of his brain and spine followed by a Spinal Tap.   The doctors will compare the results they get tomorrow with the previous results to see if there are any signs of tumor regrowth or cancer cells in his spinal fluid.

Since Anaplastic Ependymona is a very aggressive form of cancer and all of the people we've met at St. Jude have had recurrences, I'm a little nervous about tomorrow. I know that God has a plan for taking Ingram and our family down this path. I know that God is totally in charge of the situation. I know that God loves Ingram more than we do, more than we can even imagine. I know that God loves us more than we can imagine. I know that God provides everything we need at every given moment. I know all these things and more in my heart and in my head, but right now I'm just a little nervous and ready to get through tomorrow.


Mommy's Little Man!
(Craig made me put this one in tonight. This is from our family pictures
 taken the night before Ingram started radiation.)

Monday July 9th, A Noisy Start!

We woke up this morning to the noise of cement trucks and it was great!  Ingram was glued to the windows and was fascinitated by the trucks.  He loved watching them empty out, then the next one would pull in, then he'd empty his load and the other guy would be back fully loaded again.  I'm not sure our neighborhood drivers were happy about the road being a little congested in front; but if they had boy in the car, I'm sure they were loving it. 

We pretty much did nothing today, other than watching the cement trucks and the workers.  We played hide and seek and Play-Doh off and on all day.  We also went upstairs and tried to play Super Mario Brothers on the Wii but I couldn't figure it out.  I guess when the girls get home from Kanakuk, they'll have to teach me how to play so I can help Ingram. 

We also played a game that I have no idea what it's called (Craig said it's called Jai Alai, but I've never heard of that).  It's kind of like mini lacrosse but it's a full plastic scooper handle thingie with a little handle; Ingram calls it "Toss" because you toss the ball with the scooper thing to the other person and they catch it with their scooper thingie.  Beau also likes to try and get the ball and runs like crazy when he gets it.  I think Beau laughs at me as I'm chasing him around the house or the yard; I know if anyone else saw this going on they, they'd laugh at me too!

On a positive note, Ingram is doing great!  He's been eating I think all day long and I'm sure he's gained some weight which is a good thing.  We go back to St. Jude Wednesday and I'll be excited to see what the scales say; I'll go on record with my guess around 35 pounds!


What begins at 8am...

...is finished by 4pm!


Saturday and Sunday July 7th and 8th, Decisions, Decisions!!

We love weekends at the Dismuke house!  The crazy thing is that we normally don't make plans till the last minute and so it happened that way again this weekend.  Mr. David and Miss Laurie were still here with us and the girls were still at Kamp so it was just Ingram to make the decisions for us for the weekend!

First decision...breakfast!  Ingram wanted bacon, eggs, and waffles so off to the kitchen I went.  Breakfast went well with all the Play-Doh that Ingram and Miss Laurie were making.  Craig and Mr. David were working in the yard (of course) and came up with some pretty fun options for the rest of today and Ingram gave his approval too. 

Second decision...swimming!  We left the big boys home to work in the yard more and we went swimming at the pool.  Ingram is a huge fan of the diving board and the slide and likes to go over and over still.  I think he's starting to have "scales and fins" come out of his skin; he loves the water!!!

Third decision...driving!  Even though he's not old enough to drive a car, he's old enough to drive the boat so off to the Lake we go.  Ingram decided he'd rather swim in the Lake than drive the boat so we swam and swam and swam.  The poor little guy's white swim shirt is no longer white; guess I'll be finding a new one since he likes swimming in it even at nighttime. 

Fourth decision...jumping!  Ingram loves to jump into the pool now either off the board or off the side of the pool.  He's come a long way from wanting us to be right there to catch him when we were at the beach to now doing cannonballs, attempting dives, and impersonating animals when he goes off the board.  For the first time ever, he jumped off the side of the boat!!!  He did it a couple times and his girls are going to be so proud of him when they find out. 

Fifth decision...sleepover!  Some friends offered their lakehouse to us again so we wouldn't have to drive back home late but we hadn't really thought we would stay the night.  Well, Ingram decided he wanted to swim again the next day and so since he's in charge this weekend, we said sure.  But we hadn't really thought about Beau, our dog that we left at home.  He stays outside a lot (with an invisible fence) and loves to run alongside people and their dogs alike but stays in our yard.  So we finally get settled and showered and get dinner and realized we still hadn't figured out what we're going to do about Beau.  The Murphy family once again came to our rescue and put Beau inside at night and let him out again in the morning.  Beau must have played hard with them because he's been sleeping off and on ever since we got home around 6pm Sunday night. 

I would add another decision that he made, but it wasn't his decision really.   He had so much fun these past couple days and was so tired that on the way home he fell asleep in the car...with his dinner in his hands!  He's taking after Daddy here (some of you know how he fell alseep eating in the hospital about 5 years ago with his heart surgery) and had just worn himself out and couldn't stay awake anymore.  He also fell asleep on the boat for about 30 minutes which is no new thing; the funny part of that is that we had pretty much just gotten out on the water and were driving around and it wasn't even close to his naptime.  Hopefully, though, he'll get a good nights sleep tonight and take it easy for the next couple days at home too. 


Smashing Bushes With Mr. Jay's Bobcat!

The Boys Chilling Together In The Lake!

Mommy May Be The One Doing The Steering,
But Ingram Is The One Doing the Speeding!


Friday July 6th, Smiles All Around!

Chic Fil A was the wildest place on Earth this morning at 10am.  We met Ingram's class to play and have lunch and it was so much fun!  He didn't get to finish out the year with them and won't be able to start back in the Fall either.  After  his surgery, the class made a huge sign with all their handprints that is on our fridge and he was looking at it the other day.  He said, "Mommy I miss my friends; I want to play with them right now!" 

So what does Mommy do?  I make it happen!!  It was so much fun to watch them run and play together; other than the first minute we arrived when Ingram turned shy, it was the loudest place on Earth too!  The boys were chasing each other through the steps and slides and the girls were sitting in the bubble car looking down at all the rest.  He told me when he left how much fun he had and that he wished he could do that every day.  Our hearts were happy!!

Another fun thing for today was that Mr. David and Miss Laurie came down to see us.  Ingram's new thing is to play Hide and Go Seek, so of course, he got Mr. Daivd to hide and Miss Laurie would help him with the seeking when his hiding spots were too hard.  At least this time, Ingram didn't shoot Mr. David with Nerf bullets over and over again!  They just got engaged last night and asked Ingram to be their little ring man for the wedding.  When Mr. David told him they're getting married, Ingram just looked at him like "I have no idea what you're saying;" he told him he gets to have a slumber party every night with Miss Laurie once they're married and he got excited!  The girls will hate that they missed Mr. David and Miss Laurie; judging from the Kanakuk pictures we've seen, they're having a blast so I'm sure it'll be okay!


Friends from 2B Taking Over the Playroom at Chic Fil A!
Mr. David, Miss Laurie, and Ingram;
He'll Probably Giddy-up Down The Aisle At Their Wedding!




Thursday July 5th, Lazy Day...Almost!

Okay, so we've been staying up late for quite some time now and Craig and I figured we should try to to get  Ingram rested somehow from all our fun!  Ingram slept in till almost 9am and I woke up just before him!  Nice huh? 

With just a little time left before I turn into Mama Bear (not the kind of Mama Bear that fusses at folks, but the Mama Bear that protects my little man when chemo starts), there are so many things that we want to do with Ingram and at home that it's hard to get started.  We have a ton of friends that we want to hang out with, projects around the house that I've been saving for later (that I don't think I'll get around to at all), errands to do before we go into the hospital, and more. 

But instead of doing all that kind of stuff, we played Hide and Go Seek in our pajamas, ate breakfast and lunch in our pajamas, played WiiCar in our pajamas, watching the guys working in the pit in the backyard, and more...in our pajamas.  We probably would've stayed in our pajamas all day if the car guy hadn't called at 3 this afternoon and said they had a shuttle heading to pick us up since all the work on my car was done.  In case you didn't know, we had regular service to do, parts to buy, and body work to be done since I hit the garage door backing out on the Saturday...it was not a fun bill to pay today!

We also took Beau on a walk with Ingram on riding his scooter.  The funny part of that is that it's blazing hot and Ingram doesn't do well with the heat nowadays; by the time we got to the end of our driveway, he was ready for a break.  He brought a drink with him and it was a drinkable yogurt!  It reminded me of the time when Madison was 2 and had a brand new play kitchen.  She fixed hot yogart for me and I have a feeling that if Ingram hadn't finished his whole yogurt at the driveway, he would've been drinking hot yogurt for sure!

Yummy...Drinking Yogurt in 100 degree heat!


Wednesday July 4th, Celebrating in Style!

Ingram woke up ready to go swimming and it was all I could do to hold him off till the party actually started 3 hours later!  That little stinker is loving the water and definitely making up for lost time.  He jumped on the trampoline while the big kids were eating their lunch and he attempted to swing on the hammock;  after a few tries he finally got it all figured out.  He went down the slide a million times and laughed the whole way.  Of course, no matter where we were, he would holler "Mom" or "Dad" every time for us to turn around and watch.  He swam all around the pool and squirted everyone with the water guns.  Needless to say, I think's he's going to turn into a fish pretty soon!

 
He misses his girls for sure and has been sleeping in their shirts during naptime and bedtime.  It's pretty cute and I know the girls will love it when they find out!  It was so easy at the pool party only having to keep up with Ingram but at the Fireworks tonight, it was even easier not having to figure out where the girls have run off to.  With that said, we really miss the girls!  Luckily we were able to see their pictures online and they were smiling and happy; they were even in two pictures together AND they looked happy to be with each other. 

Why isn't my pool ready today?
Mr. Jay made the hole yesterday!
That's okay, I'll just go to his house!!!
Check out me on his slide...






Ingram finally learned how to stay off the ground.


Boing! Boing! Look at me! Boing! Boing! Ha Ha Ha!

We were as bright as the fireworks with our glowsticks!




Tuesday July 3rd, Tractors, Bulldozers, and Dumptrucks Oh My!!

We are soooooo glad today is here!  Today is the first day that we've been here to watch Mr. Jay and his guys (that's what Ingram calls them) work in the back yard.  More importantly though it's the first day that they actually put a hole in the ground!  And it's a huge hole!!!!!  Ingram says it big enough for all his friends, so that's an invitation for everyone who is a friend of Ingram to stop by the house in about 6 weeks to go swimming!  Party time!!

Until then, our backyard is a boy's paradise!  We've got dirt piles everywhere, a dumptruck going in and out of the driveway all day long, a bulldozer scooping out everything, and it's very entertaining.  Not to mention the Bobcat that's parked outside our house; Ingram is loving the machinery!! 

Even Beau is excited about all the "boy toys" in the yard; he's just the nicest puppy to let us know anytime anything moves outside the window by barking.  You can imagine how peaceful our house is right now.  I'm sooo kidding; that dog was about to drive me bonkers so into the kennel he went for extended naptimes if you know what I mean!

Daddy and G-Daddy are about as crazy though and playing a round of golf at 4pm in 100+ degree heat.  Don't forget to add the wonderful Memphis humidity!  That's okay though because swimming makes it worth it afterwards. 

This morning Daddy was on TV on the Fox Business Channel to talk about work stuff.  I'd go into detail, but really it's just a lot of numbers and letters that he was talking about.  QE1, QE2, and the possibility of QE3;  you'd think Economic guys would at least know their ABC's!  Maybe Ingram should go teach them all a thing or two! 

This afternoon, G-Daddy and Ingram made cards for the girls to go in their packages.  I think that's the other thing the girls love about being gone at Kamp; they know Mommy can't go a few days without sending them some loot!!  Girls, if you're reading this, it'll be there this weekend!

9:00am...What A Fun Way To Start The Day For A Boy!!

10:30am...Daddy Looking Good On The Big Screen!!!

1:00pm...Giving A Little Love On Paper For His Girls With G-Daddy! 


8:00pm...Where's The Water?

Monday July 2nd, Sleeping in!!

Woohoo!!! Today was the first day that we didn't have to be up early and it was awesome!  Granted, we didn't have to be up early on vacation, but Ingram woke up every day when the sun came up.  Not only did he wake up, but he also woke up Lindsey who was sleeping in the next bed each morning saying "Lindsey! The sun's up! It's time to play!" regardless of if they went to bed at 10 pm or 11pm each night.  But hey, it was the beach and we needed to play, right?

It's so hot here that we took in Beau once we were up (finally at 8:45am) to the groomers to get shaved.  Poor guy got all his hair on his head chopped by Craig the other night because it was just so much; the funny thing was that Craig didn't clip his body so he was just a tad bit disportionate!  Just imagine a cockapoo with a shaggy, curly black and white body and a slim and trim head.  It was a little embarassing, but Beau didn't seem to mind because he was also covered in mud.  Don't worry though when we picked him up, he was fully proportionate and looked like an overgrown rat with no tail, but he's going to be less hot in our 100+ degree temperatures!

We went to out to lunch at the last minute with a friend and enjoyed catching up.  Ingram's restaurant choice for today, none other than Chic Fil A!  As usual, we ran into 3 other families that we knew too and had fun seeing them all.  After our time at lunch, it was the perfect time for a nice long nap for Ingram...NOT!  That little stinker slept for about an hour and woke up and told me he was still tired.  I tried to convince him that he could go back to sleep, but he didn't buy it.  Just in time though because some friends came by that had $540.00 that their 8 year old son had raised for St. Jude that he wanted to donate to Team Ingram. 

After dinner we went swimming again and Ingram loved it!  He's not scared at all and even jumped off the board over and over again.  He was doing his version of cannonballs and walkling like a bird flapping his wings and even asked Craig to teach him to dive.  The pool also had a slide, so he slid, and slid, and slid till he could slide no more.  He went down on his bottom about 50 times and then Craig gave him the idea of going down on his belly, which he did!  Head first on his belly down the slide he went!!! That little joker didn't make a fuss about bedtime because we left the pool at 9:30pm and he was in bed with Beau's help by 10:15.  Hopefully we're sleeping in again!


And To Think That Last Week He Was Scared Of Getting Water On His Head!

This Attempted Dive Almost Turned Into a Bellyflop!

Sunday July 1st, Compassion

Being at church was fantastic today.    We have not been regular at church since everything started for many reasons.  In the beginning it was because Ingram was throwing up so often and obviously recovering from brain surgery is a tad bit difficult.  Then it was just being exhausted going nonstop at the hospital and wanting to spend some quiet time with the kids.  More recently, we had been out of town spending time with the kids and our family before it all gets crazy again. All  that to say that I have really missed our church family and today is one of those days that God put people in my path for His purposes.  

I know Craig has talked about how special and overwhelming it is when people tell us they read our story and pray for Ingram for him personally, but today for some reason it hit me as well.  I'm always emotional when we catch up with our old group of friends and talk about Ingram; they're the ones that we've know since before we all started having babies and we have all been through so much together in our 14 years at First Evan.  But today it was more our newer friends in the church that have brought my emotions and my thankfulness out.  I'm not talking about thanking them for reading or praying, I'm talking about thanking God for surrounding us with such a body of believers that truly have enveloped us and touched us, especially me as a mother, with their hugs, their conversations, and His compassion. 

Craig always tells people about how emotionally strong I am, but today my heart melted as I listened to people throughout the church talk to us as a couple and talk to me as a mother about how they follow us daily and pray for us daily.  Of course it's an emotional roller coaster that we're riding, but we have felt being lifted up by the body of Christ.  I think I cried on the phone the April 3rd when I called Craig and two others at the intial news and then again April 10th the day we were discharged from the hospital.  On the 10th when I cried, I was with a group of my girlfriends who came to take me out to lunch and get me out of the hospital for just an hour.  It was then that I got the call from Craig that we were being discharged from Lebonheur and would become a part of the St. Jude family just two days later.  When I fell apart then at the reality of my child having cancer, the level of compassion from the body of Christ overwhelmed me; these dear girls swooped in, put their arms around me, and started praying that very instant in a crowded restaurant in Memphis.

That is the same feeling I had today, the compassion of Christ being filtered through friends and acquaintences alike.  Just as Craig said Friday, the compassion we've been shown is overwhelming and I honestly don't know how we would be getting through this time in Ingram's life without God showing His love and His compassion on us in these ways. 


These Kids Were Just As Crazy In Panera Bread Eating Lunch
 As They Were Eating Ice Cream For Dessert!

Late Night Swimming Party At The Berry's House;
Notice The Sweatband They Picked Out For Ingram While They Were In Ethopia!

Saturday June 30th, And They're Off!!

Saturday morning before 6am we pulled out of our driveway to take our girls to camp; well, not take them to camp, but rather drop them off in a parking lot with about 100 other kids to ride about 7 hours to Kanakuk Kamp in Branson, Missouri for two weeks.  We were up so late Friday night getting things ready that when my alarm went off at 5am, I was very tempted to push the snooze button! 

G-Daddy (Craig's Dad) made it in around midnight from Texas so we both got to go drop off the girls and Ingram got to sleep in.  Now that I'm thinking about it, it might not have been so bad for only Craig to go because as I was backing out the car, I hit the garage door and caused some damage.  I'm laughing about it now, because of all the other things that Craig keeps reminding me about that I've done to the car in the last couple months.  I just realized I never told him about the parking block I ran up and over and busted in half in the process; oh well, guess he knows now. 

By the time we got home, Ingram and G-Daddy had already played baseball outside for a while, made race tracks inside, and of course chased around Beau too.  Ingram asked to paint and I enlisted G-Daddy to paint with him so that I could get a few things done.  I've got to say, G-Daddy got more into the painting than Ingram did and he also taught him to mix the colors to make new colors; I think that is the Chemist in him coming out!  G-Mommy also sent a huge battery operated automatic water gun for Ingram so that became the bribery needed for Ingram to take a nap because he really was "not tired at all."  Not only did Ingram take a nap for about 4 hours, but we all ended up sleeping for a long time;  I don't think I've had a nap for more than 10 mimutes in forever and we both slept for at least 3 hours! 

After naps, we all went outside to work in the yard...kinda.  Craig and G-Daddy really did work in the yard but we (Ingram, Beau, and me) worked hard to make sure they stayed cool and offered them plenty of water (in the form of a water hose and water gun and water bottles) to make sure they didn't over heat.  We're sooooo thoughtful in that regard!  Needless to say, it was about 10pm for Ingram to go to bed and then I think I finally conked out around 1am and Craig around 2am. 


Daddy's Little Girls!

G-Mommy Isn't The Only One Who's Artistic;
Check Out The Shark In the Bottom Right That G-Daddy Painted For Ingram!

Friday June 29th, Overwhelmed (From Dad)

There have been times over the past three months when we have been overwhelmed by peoples’ generosity. Friday was one of those days again. We had an early morning, meeting the folks from Dean Video (www.deanhd.com) at St. Jude at 8 a.m. to film some more footage for the girls’ fundraising video. They brought so much equipment that it rivaled some of the medical equipment in the rooms at St. Jude. This is the third shoot they have done including almost seven hours of filming (for a video that will probably last no more than 10 minutes). There is also no telling how many hours these folks have put into making the film. When we called Andy Dean to ask how much it would cost to put together something like this, he said that they wanted to do it at their expense to help the girls and to benefit St. Jude. Dean Video is a for-profit business with real video experience, filming things ranging from company videos to TV shows to movies; and, they are so moved by the idea of “Finding Cures, Saving Children” that they have freely given up their time for this – and a lot of it. As they left St. Jude today, the emotion of it hit me. It is both overwhelming and encouraging to me that 1) the mission of St. Jude is so compelling, 2) people can be moved to such inexplicable generosity, and 3) 8 and 10 year old girls can be catalysts for things of this gravity. Probably my best attribute in my career is my ability to use words to influence peoples’ decisions. My daughters will, through the purity and honesty of their words, influence many more people than I will ever be able to. It is humbling to watch them. It is overwhelming to see people like Andy Dean, and his folks, give their time to help the girls tell their story. And it is with much excitement that we wait to see how big of an impact this may have. (If you need to get some videos made for your business, these guys are as good as their hearts are big.)


I wish we could raise enough money to fund the work at St. Jude for the next 50 years. There is no telling how many children will get a chance at life because of the donations being made today. In large part because people have funded St. Jude's battle over the past 50 years, about 7,600 children diagnosed with cancer this year will beat it who would not have before St. Jude was founded in 1962. On average there will be 34 children in the U.S. diagnosed with cancer today. Twenty-one more of them will survive than would have in 1962. It costs St. Jude $1.7 million per day to run the hospital. As someone bent on understanding the economics of decisions, I am tempted to ask if it is worth this cost. I’m not sure it would be worth it to spend that much to extend my life (I’m 37, have lived life fully, am repeatedly reminded that I am past my prime, and apparently have enough wrinkles to validate that sentiment). As the parent of a little man who hasn’t had a chance to fully develop his personality, to know the disappointment of getting cut during tryouts for a varsity team, to know the pride of making the team the very next year, to feel the little butterflies in his stomach the first time he asks a girl to go to a dance, to feel the big butterflies when someone says yes and he realizes he actually has to dance, to know the nervousness of moving into a college dorm for the first time, to feel the earth-moving high of falling in love with his soulmate, to feel that unmatched and indescribable feeling of seeing his own child open his/her eyes for the first time, and to experience God in a way that gives meaning to life; I would say that there is no sum of money in the world that is too much for these opportunities. And that’s just for my son. We’re not the only ones at St. Jude – by a long shot. One thing that I have been reminded of over-and-over since April is the woeful inadequacy of material wealth when compared to giving a three-and-a-half year old a chance at life.


I had a similar feeling of being overwhelmed this afternoon when I was looking at someone's swimming pool with a friend of ours who is a poolbuilder, Jay West. The West's are also neighbors and, if my memory is correct, have stayed at the house with our kids twice in the past two years while Ashley has taken me to the E.R. (it may hvae been three times but one of the visits was for a concussion and, ironically, I can't remember if they came over for that). Yes, even as an adult I still frequent the E.R. That can be part of living that "full life" I mentioned earlier, although some of our friends would argue that it's optional. To the point, when we were looking at the pool the family came out and wanted to introduce themselves because they have been praying for Ingram. These moments are difficult to explain. You want to cry. You want to hug them and say thank you. You want to ask God how it is that He has time or organizational capacity to sovereignly provide people to encourage you just when you need it, even though you don't realize that you need it yet. The grandeur of His sovereignty and grace is infinitely greater than the grandeur of our valleys - even the big ones.


Filming at St. Jude for the Girls' Fundraising Video with the Folks from Dean Video

Thursday June 28th, Driving Home : (

Oh how we dreaded leaving the beach today!  I'm not sure which part we were dreading more; the never-ending question of "How Much Longer?", the anxious pleading of "But I Can't Hold It Anymore!!", returning home to over 100 degree temperatures with no water relief anywhere, or the uncertainty that would be facing us once we were back to our new reality. 

For the most part, the drive was uneventful but full of fun and little one-liners that would come from the backseats at different moments.  In my observation, with girls the vacation begins when you pull out of the driveway and is about having fun while we're getting there.  Also in my observation, with guys, it's all about the destination meaning how fast the car gets packed, how fast the stops are, how few stops there are, and making sure that cars we pass don't pass us again.  Craig has come a long way and now I think he enjoys the drive to and from almost as much as we do. 

We girls of the Dismuke family are definitely known as lolly-gaggers and are so slow at stops for food, gas, and restrooms.  Ingram was with Craig at the car pumping gas or something when we were coming out of the store and we affectionately heard "Girls, Get Your Move On!" coming across the parking lot in a very loud voice.  No, it wasn't Craig...it was Ingram!!!  I couldn't believe it, but then again I was sooooo ready to be home by this time. 

Since it took us a little longer, we weren't going to be at the kennel before they closed to pick up Beau from his week-long vacation.  The kids were so sad that we wouldn't get Beau, expecially becuase he would have to wait until Friday afternoon till we could pick him up.  We called Jennifer Murphy (great neighbor, friend, and most importantly our vet's wife) and she was able to pick up Beau and bring him home for us so that Lindsey would be able to see him.  She so badly missed him on our vacation and was crying before we even got out of the state of Tennessee!

Beau Hitching A Ride Home In The Murphy Car!

Wednesday June 27th, Last Day Of Vacation


Today was our last full day of real vacation since driving home in the car with 3 kids doesn’t count as any vacation at all!  We woke up to a beautiful day and the hardest part was deciding what to do first.  We had so much fun the day before at the beach digging and riding the waves that we decided to go there first thing.  
Our mountain that Craig dug Tuesday was gone so Ingram decided he wanted to dig a hole instead of a mountain so we dug and dug and dug.  By we, this time I mean me and Ingram; occasionally the girls would dig for a minute or two.  It was great though and our style definitely showed through; at first we were trying for a lazy river sort of thing where the water would come up, go around a curve, and go back down.  I decided it was too much work so we just made a big hole with a wide mouth entry and Ingram was happy.  As a matter of fact, he told me that it was perfect!  
We played football on the beach and Craig successfully taught the girls how to kick the football barefoot; he was secretely working on soccer techniques for when they pick back up with practice in August but don’t tell them!  A little bit later I noticed Ingram was walking toward the boardwalk so of course Lindsey heads after him and then I head after her.  Ingram decided he was ready to play in the water at the pool since he’s not much of a salt water kind of guy.  After lunch we all played at the pool some more and Craig and the kids were trying to make a human tower and I think everyone at the pool enjoyed it.  They would get almost all standing with Craig on the bottom, Madison on his shoulders, then Lindsey on hers, then Ingram on Lindsey’s shoulders and come tumbling down over and over again.  
Craig and the girls headed to Big Kahuna’s Water Park to meet my sister’s family and their whole crew.  Ingram needed a nap so we met the others at the outlets once he woke up, did a little shopping, and then met them at closing time at the water park.  When we pulled up at Big Kahuna’s I thought, they were done and we’d head out for dinner.  WRONG!!! They were in line at this tower as tall of the Eifel Tower it seemed waiting to be pulled up by strings and then go plunging 150 feet only to swing back and forth like a pendulum of sorts.  I couldn’t believe my girls were about to do this and I was a nervous wreck.  They got strapped in, started being pulled up and back (at this point Madison said Lindsey started to cry a little...I would have been begging to be put back on the ground!!), and away they go to the top.  Madison was the one to pull the cord and down they come...screaming their little heads off in shear panic for the first couple passes then it turned into laughter until they were on the ground.  The craziest part though was that Ingram was asking for HIS ticket so he could have a turn and everyone around started laughing but that little stinker was serious and wanted to go for a ride; no way little man!!!  


The Soon-To-Be Leaning Tower Of People!



From Left To Right...Excitement, Fear, All Out Panic;
These Three Are Definitely Braver Than Us Chickens!!